Whether spina bifida has been part of your life for years, or you have been faced with a new diagnosis, one of the best ways to start finding more information is to contact the Spina Bifida Association of North and South Carolina.
The local association is affiliated with the National association, which allows for information sharing and advocacy on a larger scale. The advisory board is made up of adults with spina bifida as well as parents of children with spina bifida. The SBANCSC raises money that goes toward various projects, including scholarships that help offset the cost of local families attending the national conference. They also organize local events that allow families to connect with each other.
You can find the SBANCSC website here.
You can find the SBANCSC facebook page here.
You can find the SBANCSC facebook support group here.